User Profile
Add Friend
Add Note
Track User
Send Message
Send V-Gift
EDS Alert
Blogging About Ehlers Danlos Syndrome
Created on 2007-04-16 19:02:11 (#12743318), last updated 2009-11-12
28 comments received, 48 comments posted
Plus Account [Gift]
59 Journal Entries, 5 Tags, 0 Memories, 0 Virtual Gifts, 3 Userpics
Basic Info| Name: | edsalert |
|---|---|
| Location: | CA |
| Website: | North American EDS Mailing List |
BioThis is a placeholder for a blog that collects various links about Ehlers-Danlos Syndrome, a rare genetic condition, and pulls them together into a weekly (or bi-monthly) newsletter.
To read the newsletter go here:
http://edsalert.wordpress.com/
If you are a member of Livejournal you can go here and add this subscription link to your Friends List. You can continue reading the newsletter as you would normally do on your Livejournal Friends Page.
The subscription page is here:
http://syndicated.livejournal.com/eds_alert_wp/
(click on "Add this feed to your friends list ...")
All other users: you can track the newsletter by pointing your RSS feeds to this link
http://edsalert.wordpress.com/feed/
YOU DO NOT NEED TO FRIEND THIS JOURNAL TO READ THE NEWSLETTER.
In August of 2007, we moved this newsletter and all its contents away from Livejournal because the company's new 'no linking" policy made it impossible to link to personal web diaries and/or or websites that might contain content that Livejournal could consider offensive. Our intention has always been to provide information about Ehlers-Danlos without censorship or judgment.
Parental Advisory: Having said this, some of the personal blogs and websites we may link to in the course of collecting information about Ehlers-Danlos may contain content that is adult in nature. If you are a parent, please take note.
If you have any questions, please send me an e-mail at: edsalert@gmail.com
To read the newsletter go here:
http://edsalert.wordpress.com/
If you are a member of Livejournal you can go here and add this subscription link to your Friends List. You can continue reading the newsletter as you would normally do on your Livejournal Friends Page.
The subscription page is here:
http://syndicated.livejournal.com/eds_alert_wp/
(click on "Add this feed to your friends list ...")
All other users: you can track the newsletter by pointing your RSS feeds to this link
http://edsalert.wordpress.com/feed/
YOU DO NOT NEED TO FRIEND THIS JOURNAL TO READ THE NEWSLETTER.
In August of 2007, we moved this newsletter and all its contents away from Livejournal because the company's new 'no linking" policy made it impossible to link to personal web diaries and/or or websites that might contain content that Livejournal could consider offensive. Our intention has always been to provide information about Ehlers-Danlos without censorship or judgment.
Parental Advisory: Having said this, some of the personal blogs and websites we may link to in the course of collecting information about Ehlers-Danlos may contain content that is adult in nature. If you are a parent, please take note.
If you have any questions, please send me an e-mail at: edsalert@gmail.com
ConnectInterests (6):
Friends [View Entries] Friends (79):
2paintwithwords, abispaindiary, ameyakoi, annekrogers, ashiegrrrl, aucklandangel, batdina, bruce_lee, butterflyhickup, carolyn_claire, cherrypin_up, chewedpencil, cueballex, deathofone, digthatjazz, diluvian, edsalert, edsliving, elingail, elizabeth_1990, fashionriot, fluzby, gelinu, ghymoreid, ghymoreids_mum, gothic_sez, grimacounsellor, halcyon_shift, hobbit_sidhe, indiamoon, izzytart, jadegirl, juliann, justabi, kanporinpoche, katbcoll, kath_ballantyne, keb, kezzykat, kitty_kate, lapillus, larisa57, lil_miss7, lil_pandi, luridmuse, matti447, miiya, miss_ferrari, moongoddess, movies_michelle, mystickaos, naughtypixie, nolies32fouette, one_undone, painelius, pardon_my_pain, raina_layn, reptarr, rideon, rozallin, ryca, sableantelope, scarbaby, screamingbitch, selenay936, shadowakiyah, shatterlife, shy_matsi, silveredmane, stacey8127, swerve, synecdochic, titch86, tv_elf, twocats, valantis, xlorp, xsweetariax, yoyomagsi
Mutual Friends (33):
ameyakoi, aucklandangel, carolyn_claire, cherrypin_up, diluvian, edsalert, elingail, gelinu, ghymoreid, ghymoreids_mum, izzytart, juliann, justabi, lapillus, luridmuse, movies_michelle, painelius, raina_layn, rideon, rozallin, ryca, sableantelope, scarbaby, screamingbitch, selenay936, shadowakiyah, shatterlife, shy_matsi, silveredmane, swerve, tv_elf, valantis, yoyomagsi
Also Friend of (6):
Communities [View Entries] Watching (9):
baypainfatigue, eds_community, ehlers_danlos, ehlersdanlos, fibromyalgia, lj_maintenance, lj_spotlight, news, the_spoonies
Member of (6):
Feeds [View Entries] Watching (9):
